My Blog

Ok so we are getting a feeding tube on Dec 1st we will be in ACH ( arkansas Childrens Hosptial). We went to get tested for the reflux and they said that he was not reflluxing maybe 2xs but not bad but because his stomach was going to be growing because of the tube they wanted to go ahead and do the nissen thing where they take his stomach and wrap it around his espoughus ( however you spell it) just so they dont have to open him up later and do it again. I was fine with that because I dont want him to have more than one surgery.
So this is how it will go I will call them on the 28th and see what time his surgery is and then I will post again. But so far he is having a hearing test done, pressure check and maybe a catract removal on his eye, and a feeding tube and nissien instered, He will be in there for 3-4 days at the most. They said depending on how well he does. Yes I am scared and nervous I have never dealt with anythng so hard to do for him . I knew he had to have his shunt to survive but i did not think a feeding tube would mean the same thing.     
I hope it all works out for the better for him. He is a strong child and I love him and I hope that you all pray for him.

There is another child I would like for you to pray for her name is Maggie Jo Tadlock she is 6mths old and a cutie pie. She is set to have a open heart transplant. She is 1st on the list and pray that they find one soon for her. She is doing good but she needs extra prayers that she gets the heart she needs and recovers fast.
Thank you for all the thoughts and prayers and sorry there is no pitcures we have not camera right now it broke.
Lots of love,
Amber